Today was a great day!

Today was a great day! A lot of days are good days. I can honestly say that most days are good days. I’m alive. The sun is shining. I have a career I love, an amazing hubs and two great dogs. I’m very lucky in life! I love life! Sometimes I’m annoyingly optimistic. My neurosurgeon told me at my last visit that he wished he could bottle my energy and give it to his other patients. Apparently I’m adapting well to my transitional phase of no walking. (Yes, transitional because I don’t plan on being here permanently!)

Am I always so chipper? Of course not! Some days it sucks. It really sucks! Those usually correspond to times when I can’t do something I really want to do, like go to someone’s house for a party for fear that I won’t fit in their bathrooms. Or, when my baby niece wants me to follow her up the one stair into my sister’s house to go play inside and says “come” and I can’t. My heart breaks so completely that I’m surprised I don’t burst into tears right then and there. Those little one and a half year old eyes looking at me as if I don’t want to follow her and go play, and not old enough to understand why I’m not. Yes, those situations get me down. A couple weeks ago I broke into tears on a random evening because I hadn’t left the house in two days and felt trapped because I couldn’t just go run errands if I wanted. Poor hubs was completely bewildered because I hadn’t even asked to leave the house. I don’t know what brought it on. And like a tropical storm swiftly moving through, I was fine after a couple minutes. My “freak outs” are few and far in between. And for that, I am grateful!

But back to my day. It started out with a visit from my folks. My mom was coming down to take me to physical therapy. My dad surprised me by showing up as well. He had told me yesterday he had an appointment and had to sit this week’s visit out. Apparently he rearranged so he could come too. That was a very nice surprise!

Then came the surprise paint color in my new office. The office I’m in now is not ADA compliant. I have the world’s smallest bathroom. The door is 15 inches wide. That’s almost half the width of my wheelchair. Because of that, I can’t use my office as anything other than a place to meet clients for a few minutes. So, on July 1, I’m moving to a new office. The landlord is painting and giving me new carpet, both of which I got to choose. The paint color I chose was a silver color with a blue tone, with a brighter blue for an accent wall. The painter had a question regarding my accent wall, so I stopped by to show him. The paint color was much more of a sky blue and so much prettier than I had hoped! The color literally made me happy! I’m so excited to spend time in my new office! And yes, I do acknowledge that I am easily excited.

Next came my physical therapy. Today was the start of aqua therapy with my PT, 5 O’clock Shadow. I hadn’t seen 5-O in a few weeks as I’d just been focusing on walking and standing at home. I also hadn’t been to the pool for a few weeks for the very same reason. It was nice to reunite with both after the hiatus. I loved being in the pool. And 5-O couldn’t be quite as hard on me when I could simply float away from him or dunk under the water to ignore him. I did threaten to pull him in if he was too mean. Maybe that helped. But the session was amazing and I feel great. Sore, but great! I’m excited for this new experiment of aqua therapy with 5-O.

And the final excitement, which is probably the biggest excitement of all: I went to the mechanic who does the car modifications! I learned about all the amazing options for modifying my car so I can drive. If I had unlimited money, the guys there could do so much! They could turn any car into a car with suicide doors and a lift and a moving chair that could drop to get me. It’s unreal what they can do! All I really need now are hand pedals and a lighter wheelchair. I love my car and don’t really want to try to trade it in for a different one. But, it’s amazing to know the options. They showed me one car that belonged to a woman with polio. The seat comes out and lowers to a foot off the ground for easy transfer. Then the wheelchair crane comes out of the back seat, scoops up the folded wheelchair and takes it into the car. The doors are automated as well, so after the seat takes her into the car, the doors automatically swing shut. It’s amazing! I, on the other hand, have pretty good upper mobility and strength, so I don’t need something quite that extensive. (Sidenote: I would love all of that, however to do that would cost 15,000-45,000 at least, depending on the car.) So for now, I’ll stick with just the hand pedals and fly high on the knowledge that I can start driving myself places! After 10 months of relying on people for rides and feeling like a high school freshman, waiting for mom to come take me to the mall, the feeling of my soon-to-be-had freedom is overwhelming!

And that, ladies and gents, was my great, amazing, wonderful day!

2 thoughts on “Today was a great day!

  1. mary landman says:

    Stephanie, your courage is so inspiring…you WILL walk again, I KNOW it! It is nice for you also to be getting your car fixed so you can be more independant. That will be a good feeling. Even if you just want to go drive around a bit, you will be able to do that. Don’t get to frisky, but do have fun…mums

  2. Lorraine varela says:

    Your amazing! Never give up hope . your a good example how we should all be if anything ever happens to us. Your children will always respect you for that.

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